Cancer Advocates

Cancer Advocates Defined

  • Individuals who have been diagnosed with cancer or have a strong personal connection to cancer
  • Represent and share the collective cancer patient/survivor perspective (i.e., insights and experiences of cancer survivors)
  • Interact with researchers to help inform meaningful, patient-centric research with the greatest impact for patients
  • Advocate for research funding and cancer awareness

Cancer Advocate Training

An informed advocate can greatly impact the direction of research. Below is a list of groups that offer specific training for advocates.

Cancer Advocate Roles

  • Ensure research is patient-centered: “for patients, with patients”
  • Ensure research is innovative, evidence-based and accessible
  • Review and contribute to papers , abstracts and grant proposals (Patient Impact, Lay Summary, Lay Abstract)
  • Attend coordination meetings, conferences, seminars and presentations
  • Represent the University of Illinois at Urbana-Champaign in cancer functions, media events and interviews
  • Spread the word about Illinois research.
  • Highlight bench to bedside research (blogs, meetings, social media, through direct interactions with other patients, survivors and advocates)
  • Serve on review panels for DOD, Komen, ACS and attend advisory panels for ASCO, etc
  • Provide a letter of support for grant applications , outlining their role in the process of research program development
  • Suggest patient recruitment strategies for clinical trials
  • Provide a patient perspective, especially considering quality of life issues, early in study design

If you are interested in participating as a cancer advocate, please contact Dr. Zeynep Madak-Erdogan or Dr. Erik Nelson.