Cancer Research Advocacy Group
Researchers + Patient Advocates
The Cancer Research Advocacy Group provides a vital perspective in the fight against cancer, offering input into fundamental research, clinical trials, outreach, and education and sharing information with cancer survivors, researchers, and clinicians. This work creates bench-to-bedside, bedside-to-bench feedback and means that patient perspectives are at the heart of everything we do.
The long-term goals of CRAG are to promote innovative, evidence-based, patient-centered, translational research, through the inclusion of cancer advocates.
Foster and expand opportunities for advocates in the UIUC research community and beyond.
We encourage participation from the following groups:
- Cancer Advocates
- Community Representatives
- Research Scientists
- Please contact Drs. Erik Nelson or Zeynep Madak-Erdogan for more information about CRAG.
Cancer Advocates Defined
- Individuals who have been diagnosed with cancer or have a strong personal connection to cancer
- Represent and share the collective cancer patient/survivor perspective (i.e., insights and experiences of cancer survivors)
- Interact with researchers to help inform meaningful, patient-centric research with the greatest impact for patients
- Advocate for research funding and cancer awareness
Cancer Advocate Training
An informed advocate can greatly impact the direction of research. Below is a list of groups that offer specific training for advocates:
- Project LEAD (National Breast Cancer Coalition)
- AACR Scientist-Survivor Program
- ASCO Advocacy
- Susan G. Komen
- NIH Human Subjects Training
Cancer Advocate Roles
- Ensure research is patient-centered: “for patients, with patients”
- Ensure research is innovative, evidence-based and accessible
- Review and contribute to papers , abstracts and grant proposals (Patient Impact, Lay Summary, Lay Abstract)
- Attend coordination meetings, conferences, seminars and presentations
- Represent the University of Illinois at Urbana-Champaign in cancer functions, media events and interviews
- Spread the word about Illinois research.
- Highlight bench to bedside research (blogs, meetings, social media, through direct interactions with other patients, survivors and advocates)
- Serve on review panels for DOD, Komen, ACS and attend advisory panels for ASCO, etc
- Provide a letter of support for grant applications, outlining their role in the process of research program development
- Suggest patient recruitment strategies for clinical trials
- Provide a patient perspective, especially considering quality of life issues, early in study design